A lot has happened to me. First of all I feel very lucky to have a wheelchair van. I honestly think I would go bonkers if I didn't have it. To make it even better, my wife likes to drive it, and she and I like to go to the same places.(honestly, I will go wherever she wants to take me, I have suggestions, she has the steering wheel.)
I realize also, when I read about ALS, that the articles always say, if not always emphasized, that the survival rate after diagnosis is 3-5 years. I have had doctors tell me that. I do not say anything...except I think horseshit. I will prove them wrong. I know I have progressed quicker than usual in my disease. But I plan to live and enjoy life for a long time.
I do not want people to feel sorry for me, or anything like that. I want to live and do things to the best of my ability. I did that in my career in the Navy. I hope I taught my sons that. Do not say, Chuck is going to die, say what can we do to live.
Lets go to the movies, the park, the store. Or lets sit around and shoot the shit. I like that.
I know I am going to die, but not today...or anytime soon. So lets do something.
Carlsbad Marathon Roll For a Cure Jan 25, 2009
My Family- The greatest
The Cook Men at Thanksgiving
ALS Team Walk At Mission Bay October, 2008
Our ALS Walk was fantastic, the team was fantastic!
My Pogi Sons
Peter, Rick, Nathan, and Tito- the greatest sons a man could have!
The family
Having Fun during Fathers Day!!
Rod, Chuck and Steve in Millington Tennessee August 2008
The Cook boys at it again 2008. Rod and Steve are awesome brothers.
Chuck and Atring
Together Forever. The Love of my Life!
1 comment:
I just wanted to comment and tell you that I am so happy I found your blog. First I'd like to say that I am so sorry that you have ALS, my father has it as well. He was diagnosed in April.
He is progressing quickly in his disease. I wish that he would talk about it more but he doesn't. I don't think he has an understanding like you do. He definitely is not the same man. It's also very hard on my Mother, she is the only caregiver.
Thanks again for your positive attitude! I will be back to read more.
Carey
Post a Comment