It has been over a month since I posted. But my hands are getting weaker and it is getting harder to type.
I have been to several doctors this month. The first was at the UCSD clinic. They see my progression and asked if i needed anything. I met a VA doctor there, He was a good guy, just trying to find ways to help me. We went to the VA hospital, and they gave me a manual wheelchair. We went back a few days later to make sure I was enrolled. They recommended a home care nurse come by weekly. Atring liked that.
We went to the Children's Hospital in La Jolla. They have a great Muscular Dystrophy program, and as a part of that a great ALS chapter. A doc came in to examine me. He was a nice guy and did tests. We got a detailed analysis from him in the mail. He said I have less than a year to live. When I read that I said "horseshit." I do not think he took into account my will to live. I know that I have a lot to live for. And I enjoy life. Problems and triumphs are all a part of life. Problems are not a big deal to me, I see them and figure a way out, if I can. If I cannot solve it, I just forget about it.
I can still walk, although it takes a lot of assistance. I cannot talk, eat or swallow. I cannot get dressed alone. And my wonderful wife gives me my showers.
I will post more. I have but one life and I am going to live it the fullest.
Carlsbad Marathon Roll For a Cure Jan 25, 2009
The Cook Men at Thanksgiving
ALS Team Walk At Mission Bay October, 2008
My Pogi Sons
The family
Rod, Chuck and Steve in Millington Tennessee August 2008
Chuck and Atring
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